How to Cope with Anticipatory Grief

Anticipatory grief is the name given to the mix of emotions experienced when we are living in expectation of loss and grieving because of it. Anticipatory Grief is particularly relevant to those who have received a terminal diagnosis and for those who love and care for them. Terminal diagnosis changes the very structure of our existence, takes away our control and our ability to hope and plan for the future. When someone we love is given a terminal illness, we become painfully aware of the fragility of life and may even fear for our own mortality. Living in expectation of death, causes us to experience many of the symptoms and emotions of the grief suffered when a loved one has actually died, including; shock, anger, denial, physical and emotional pain, helplessness and sorrow. Depression is common and changes in eating, sleeping and bowel habits may also occur. Prognosis increases our turmoil; it is inevitable that we begin counting down the days to the estimated time of demise and see the dawn of each day as bringing us closer to it. Some may feel a sense of surreal ness and an inability to fit back into the pattern of life prior to diagnosis, this often intensified by the reaction of friends and acquaintances, who may be dealing with their own shock and dismay at the news and not knowing what to do or say, avoid us. It may be some time before we can truly accept that our loved one is dying and during this time we may experience alternate periods of acceptance and denial. Often, necessity brings about acceptance for the Carer as they need to make decisions regarding the best options available for the care of their loved ones. The patient however, may choose not to accept the prognosis and it is important for the carer to recognise and support their need to live in hope of a cure. Hope is paramount to quality of life for their loved one and may even contribute to their longer survival. Whether our grief is anticipatory or grief due to the death of a loved one, there is a very real need to talk to someone about the roller coaster of emotions we are experiencing. This however is not always easy to do, due to a number of reasons which may include; trying to remain strong for the patient, trying to remain strong for the children, trying to put on a brave face for other family members and friends. Counselling, though readily available, is resisted by many, who believe that no one could possibly understand what they are feeling, nor do anything about the outcome. Speaking from my own experience of anticipatory grief due my husband’s terminal illness, I initially had these feelings and it was with some trepidation that I went to my first counselling session. Upon hearing my story, the counselling cried, further strengthening my opinion that she could not possibly help me. I was mistaken; after a few visits I began to see the benefit of these sessions and looked forward to seeing her each week. Here, for a short time at least, I could stop acting as if everything was okay – when nothing was okay, here I could take off my brave face and let my defences down. The only trouble with counselling is that it may not always be available when you need it. I highly recommend keeping a personal diary for these occasions. During the two years of my husbands terminal illness, my diary was without a doubt, my strongest coping tool, I wrote in it daily, often in the form of poetry, pouring my anger, my fear and my heartache on to the pages. Periodically, I would read back through it and through this I came to know myself very well – later I could see my strength coming through. Excerpts and poems from my diary now form a major part of my book “Lean on Me” Cancer through a Carer’s Eyes.

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Celiac Disease: What You Should Know

Celiac disease is a genetically transmitted ailment in which gluten in the diet causes damage to the small intestine preventing the celiac sufferer from absorbing nutrients from the normal digestion process. These proteins are found in all forms of mainstream and other related products. Such as durum semolina, spelt, and related grains such as rye, barley, and oats. Damage to the small intestine is caused by a reaction to the ingestion of gluten.

Celiac disease causes the villi (the tiny hair-like projections in the small intestine)to shrink and ultimately disappear. This is the vicious reaction to celiac disease. Damaged villi interfere with the body’s ability to absorb nutrients. If left untreated, damage to the small intestine can be life threatening, posing an increased risk of many disorders.

For those suffering the effects of celiac disease, they will also suffer a host of related symptoms including: anemia, calcium deficiencies and vitamin deficiencies such as B12, B6. Often, they will have other allergies.

Among the more common celiac disease symptoms, abdominal cramps and bloating, diarrhea and constipation are all celiac disease symptoms. Often, they experience fatigue, weakness, and irritability.

At this time, the only treatment available for celiac disease is a lifelong adherence to a strict gluten-free diet. For nearly all celiac disease sufferers, when gluten is completely removed from the diet, the small intestine will begin to heal and general health will improve. It is important that the celiac disease sufferer learn to read labels. If you’re not sure about a food or ingredient, stay away and learn to identify those ingredients that may contain gluten. You must become aware of gluten hiding in some not so obvious foods such as deli meats, soups, hard candies, soy sauce, even salad dressings. When in doubt, stay away! You must be very diligent if you expect to see healing.

Gluten is also often used as a binder in prescription medicines. Again ask your doctor about gtluten in medications.

You should probably stay away from alcohol altogether. Beer MUST be avoided, but alcohol that’s been distilled is believed to be OK. Consult your doctor

Sometimes gluten products are added to alcohols and vinegars after the distilling process and should be avoided entirely. Malt vinegars are not distilled and are not gluten-free.

Alzheimer’s Care Giving While Maintaining Your Own Health

Just for a moment I want you to imagine that you are coming out of a very deep sleep. If you have ever had surgery try to remember the way you felt as you were trying to make sense of things as you awoke. As you imagine or remember this sensation do you find yourself wondering if it is morning or night? Are you trying to remember where you are? Do you have a startle reaction and think for a moment that you are late for work or forgot to pick up your children at school? I have had that upsetting feeling if I wake up in the middle of the night or even after a nap. Now imagine that same fog every moment of your life……. So many care givers find themselves frustrated with an Alzheimer’s sufferer. They may say things like «He just doesn’t seem to care if I am with him or not» or «He doesn’t enjoy doing anything any more.» I know that it is so hard to accept the changes in your loved one and know that this is going to be your reality. If you can remind yourself that the behaviors are organic it will help. The plaque is building up and spreading over the surface of the brain just as a grassfire moves across a dry field. As it covers more areas your loved falls deeper into that fog. Alzheimer’s disease doesn’t show up like a broken one or a surgical scar but the effects are just as real. When the things they say or do cause you to feel angry or sad do you best to remember that it is the disease…not your loved one. That’s when it is time for some care giver TLC. Care giver burnout is a very real occurrence. If you are caring for someone you must include your own needs each day. Your health may decline at a faster rate than the person you are caring for if your dietary, emotional and physical needs are not met. Skipping your checkups with Dr.s is not an option. You may be asking “How am I supposed to do all of this all by myself?” The answer is simple. You can’t do it all alone. The first step to healthy care giving is accepting the fact that you have limitations. Every human being does. You can only stay awake, maintain your health and keep up with the demands for a limited amount of time. When you reach your limit you may find yourself suffering from care giver burnout. You may have trouble concentrating, experience nervous tension, and you may find it difficult to fight off resentment toward your loved one or others in your family that you feel should be assisting you. Reach out. Call upon your family, friends, church and community organizations. Your local hospitals will have information regarding community resources. This information can usually be found by contacting the Social Services Department. Another good resource is the Alzheimer’s Association. By taking care of your health you will, in turn be a better care giver.

Diabetes Facts

Diabetes is a chronic disease in which the body is unable to properly control the amount of sugar in the blood. The body cannot control the sugar in the blood due to the lack of the hormone insulin. Diabetes has long reaching and wide ranging health affects for those that suffer from it. Diabetes significantly raises the risk of heart disease and stroke, blindness and kidney failure. Uncontrolled diabetes can lead to death. It is estimated that over 18 million Americans suffer from diabetes, and of these 18 million it is estimated that nearly one third are unaware they suffer from it. Diabetes is easily diagnosed using a fasting blood glucose test. This if the most accurate test available. A fasting blood glucose result of 126 or higher indicates diabetes. Generally a fasting glucose test is part of an annual physical for adults. Type 1 diabetes, or juvenile diabetes, is diagnosed in children and young adults. Type 2 diabetes is the most common form of diabetes and is usually found in adults over the age of 40. Type 2 diabetes is most likely due to poor diet and overweight as 80% of those with Type 2 diabetes are overweight. There is still debate about the genetics of diabetes. If both your parents have diabetes of course your risk is higher than if one parent has it. There are also environmental triggers to diabetes. Type 2 diabetes is more closely linked to genetic factors and factors such as poor diet and lack of exercise. Some of the symptoms of diabetes are unexplained weight loss, lethargy, excessive thirst or excessive hunger, frequent urination, dry skin, slow healing sores, sudden vision changes. If you find you have diabetes you will need to work very closely with your health care provider in order to keep your sugar levels within acceptable ranges. You’ll start testing your blood sugar at least once a day and keeping the results in a diary. You will need to re-vamp your diet and pay close attention to portion size and meal frequency. A diabetic diet doesn’t necessarily mean you cannot have foods that contain carbohydrates, it means you can’t have them in an unlimited fashion. Exercise done on a regular basis has been found to help control blood sugar levels. It is suggested that those with diabetes should exercise 30 to 60 minutes a day. Living with diabetes can seem overwhelming at first, and it will take commitment on your part. However, millions of Americans live full and active lives with diabetes.

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